Evie’s story

During September, Earth’s Bounty will be supporting sick kids, like 2 year old Evie, by donating five cents from every pack sold to The Children’s Hospital Foundation.

The Children’s Hospital Foundation helps sick kids today and tomorrow by funding life-saving medical research, investing in vital new equipment, and providing comfort, entertainment, support and care for children and their families. Their incredible volunteers are there to support children, like Evie, while in hospital, helping them to laugh and smile, get better and go home with their families.

By purchasing an Earth’s Bounty product, you’re making a donation that will help to fund research to achieve faster diagnoses, better treatments and ultimately cures for some of the most devastating childhood illnesses and injuries.

We thank Evie’s family for sharing their story with us.

Evie’s condition is complex and in her short 2 years, she has spent the majority of her life in hospital.

From the day Evie was born, her mum knew something wasn’t right. Mothers’ intuition told her, her little girl was unwell and by the time Evie was just a few months old they were in and out of hospital with major feeding intolerance issues. By her first birthday, Evie’s gut was not functioning and she was literally starving to death. When she was 2 years old, Evie was diagnosed with rare genetic condition – FLNA mutation. In Evie’s case, the mutation has caused serious issues with her GI system, brain, joints and blood vessels.

The gene mutation also means Evie has developed other rare disorders, including a condition where nerve cells in the brain do not migrate properly during early foetal development, creating a high risk for developing seizures; a painful neurological movement disorder, for which there is no cure; and issues with blood vessels around her heart, leaving her at risk of a life threatening tear in her aorta.

Evie is supported by her amazingly strong parents and two older sisters, and while she feels the stress of admissions, she is also incredibly resilient and handles her pain and challenges with guts and determination. She really is made of the tough stuff!

She also receives wonderful support from the Children’s Hospital Foundation during her hospital stays. She loves music therapy, the clown doctors, and special visits from the pet therapy dogs, including her favourite, a malamute named Nanook.

“Watching her face light up when she sees Nanook is just something else,” Evie’s mum, Amy, says.

 

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